Podcast host and rare disease advocate, Effie Parks, chats about her son Ford who has CTNNB1 Syndrome.
All tagged rare disease mom
Podcast host and rare disease advocate, Effie Parks, chats about her son Ford who has CTNNB1 Syndrome.
Author of “Loving Large” shares her son’s rare disease diagnostic odyssey.
Maryland State Ambassador for NORD brings her passion for patient advocacy for the rare disease community including her daughter known as #EmmaStrong.
Rare Disease advocate and caregiver shares on the resources she has created.