Celebrate Rare Disease Month with the Coordinator of the EJPRD discussing rare disease research.
All tagged rare disease community
Celebrate Rare Disease Month with the Coordinator of the EJPRD discussing rare disease research.
Maryland State Ambassador for NORD brings her passion for patient advocacy for the rare disease community including her daughter known as #EmmaStrong.
Rare Disease advocate and caregiver shares on the resources she has created.
NORD's event in Hartford is recapped including interviews with a patient advocate, Michelle Cotton, and a Connecticut representative, Dave W. Yaccarino.
Co-Founder/CEO of Onevoice shares how his new community building software solution supports the rare disease community.