Recorded live at UConn’s 2026 Rare Disease Symposium, we reveal the grueling work of the rare journey, from battling medical dismissal and insurance denials to the fierce advocacy required.
All tagged insurance
#298 Genetic Counselors Role in Insurance with Stephanie Gandomi
Her previous roles in insurance include being the first genetic counselor at Blue Shield of California and the Director of Genetics at UnitedHealthcare.
#293 Smith-Magenis Syndrome with Parent Scotti Taylor
An advocate and parent shares her personal journey and insights about her adult daughter who was recently diagnosed with SMS.