The Rare Disease Diversity Coalition’s Jenifer Waldrop shares her insider strategies on advancing health equity for rare diseases through advocacy, partnerships, and policy change.
All tagged advocate
#98 Lydia Seiders on Aplastic Anemia
Maryland State Ambassador for NORD brings her passion for patient advocacy for the rare disease community including her daughter known as #EmmaStrong.
#57 Georgia Hurst on Lynch Syndrome
Patient advocate talks about her hereditary cancer syndrome and offers her expertise and experience.