Celebrate Rare Disease Month with the Coordinator of the EJPRD discussing rare disease research.
All tagged Rare Disease Month
#98 Lydia Seiders on Aplastic Anemia
Maryland State Ambassador for NORD brings her passion for patient advocacy for the rare disease community including her daughter known as #EmmaStrong.
#75 Eden Lord on My City Med
Rare Disease advocate and caregiver shares on the resources she has created.