Dr. Jennifer Brown and her daughter Lillian Isabella explore the realities of PKU, from food and family life to mental health and independence.
All tagged PKU
#399 How PKU Changed Newborn Screening Forever
Our PKU series kicks off with Sarah Chamberlin and Ryan Miller, sharing the journey from newborn screening result to diagnosis, treatment, and family support.
#63 Rare Disease Day 2017
NORD's event in Hartford is recapped including interviews with a patient advocate, Michelle Cotton, and a Connecticut representative, Dave W. Yaccarino.