Geana Dyer, BS, RN, the Founder of the Cockayne Syndrome Foundation shares her experience parenting 5-year-old Ronin, filmed at the New England Regional Genetics Group (NERGG) conference.
All tagged NERGG
#218 LEND Program with Betsy Humphreys, Karen Volle & Karina Mancini
Betsy Humphreys, Karen Volle and Karina Mancini share their experience with the New Hampshire-Maine Leadership Education Neurodevelopmental Disabilities (LEND) program.
#81 Irina Brooke on BRCA2
Patient advocate shares advice from her genetic testing/counseling and breast cancer journey.