The Rare Disease Diversity Coalition’s Jenifer Waldrop shares her insider strategies on advancing health equity for rare diseases through advocacy, partnerships, and policy change.
All tagged Amgen
The Rare Disease Diversity Coalition’s Jenifer Waldrop shares her insider strategies on advancing health equity for rare diseases through advocacy, partnerships, and policy change.
Neuropsychologist Kendra Bjoraker and metabolic nurse practitioner Erika Vucko share how clinicians can better support patients with UCDs by addressing SDOH and mental health challenges.
Two UCD experts, Holly Bernal and Laurie Bernstein, share how clinicians can better engage patients in their own care to help them sustain their daily UCD management needs.
Exploring the evolution of caring for females with Ornithine Transcarbamylase Deficiency with Drs. Annette Feigenbaum and Joshua Baker.