#102 Seth Rotberg on Huntington Disease
Seth Rotberg, a rare disease patient advocate and motivational speaker, joins the show to share his perspective on Huntington Disease (HD).
From 2011 – 2015, Seth served on the boards for the HDSA National Youth Alliance (NYA) and HDSA Massachusetts Chapter to continue his efforts in the HD community. He became the President of the HDSA NYA in 2012 and HDSA Massachusetts Chapter in 2013, where he led a group of dedicated volunteers to plan and execute fundraising and educational events.
Seth is still an active member of the Huntington Disease community and currently sits on the Board of Trustees for the Huntington’s Disease Youth Organization (HDYO). As a member of the working board, he connects young people to the proper social, emotional, and educational resources needed when coping with HD. His hope is to be a mentor for young people who face adversity by sharing how taking control of his HD journey has given him opportunity, fulfillment, and hope.
On This Episode We Discuss:
How Huntington Disease Affects the Body and Mind
Seth’s Journey with Huntington Disease
Seth’s Family’ History and Experience with Huntington Disease
Genetic Testing Process and Seth’s Advice
Importance of a Support System
Inspiration Behind Seth Becoming a Patient Advocate
To read and hear more from Seth Rotberg check out his website, follow him on Twitter and Instagram, and watch his TED Talk.
Stay tuned for the next new episode of DNA Today. New episodes are released on the first Friday of the month. See what else I am up to on Twitter, Instagram, Facebook and iTunes. Questions/inquiries can be sent to info@DNApodcast.com.
