Apr 13

Apr 13 #25 Interview with Cancer Hereditary Experts

Interview, Genetic Counseling, Patient Advocate

Georgia Hurst (@ShewithLynch), Amy Byer Shainman (@BRCAresponder), and Ellen Matloff (@MyGeneCounsel) are involved in raising awareness for Hereditary Cancer by holding the #Hcchats (@Hc_chat) on Twitter. You can catch the next Tweetchat April 29th at 9pm ET with special guest Dr. Sharon Bober (@DrSharonBober), an expert in sex after Oophorectomy or Hysterectomy.

Georgia Hurst shares her and her family's experience having Lynch Syndrome and how she started her non-profit, IHaveLynchSyndrome.com. Amy Byer Shainman describes her documentary, Pink and Blue, and being a BRCA1 positive previvor. Ellen T. Matloff is the President and CEO of MyGeneCounsel and shares her insight on the importance of understanding genetic testing and genetic counseling and we all weigh in on Angelina Jolie's impact on both.

Guest Bios

Georgia Hurst is a Lynch Syndrome Advocate and was recently granted nonprofit status for IHaveLynchSyndrome.com. She has Lynch syndrome, which is an inherited disorder that increases the risk of many types of cancer, particularly cancers of the colon and rectum. She writes for her own blog, other blogs, medical journals, and Cure Today. Her mission is to educate doctors and the public around the globe about Lynch syndrome.

Amy Byer Shainman also known as The BRCA Responder - @BRCAresponder on twitter, is a Hereditary Cancer/BRCA Health Advocate and a BRCA1 positive previvor. She is also the executive producer of the upcoming documentary Pink and Blue. This is a documentary about hereditary cancer, the BRCA mutations, & male breast cancer.

Ellen T. Matloff is the President and CEO of MyGeneCounsel. My Gene Counsel is a digital health tool that will increase the effectiveness of genetic testing and precision medicine. Ellen has worked in clinical cancer genetics for more than 18 years and was one of the key plaintiffs in the Supreme Court gene patent case of 2013.