#68 Bo Bigelow on USP7-Related Disorders

#68 Bo Bigelow on USP7-Related Disorders

Bo with his daughter Tess, who has a USP7-Related Disorder

Bo with his daughter Tess, who has a USP7-Related Disorder

Bo Bigelow made national news when he used Reddit and social media to find a diagnosis for the genetic disorder his daughter faces. Those same efforts led him to a researcher who is now investigating the disorder. Bo hosts another podcast “Stronger Every Day” and has written a book of the same name, as well as several novels. He co-founded Maine Rare. He was the State Leader for Rare Disease Day in Maine for NORD (the National Organization for Rare Disorders). He's also a lawyer. 

The film he produced, "Tess Is Not Alone: A USP7 Story" will be played during the Rare Disease Film Festival in Boston October 2rd through October 3rd. 

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Learn more about USP7-Related Disorders on the Foundation for USP7-Related Disorders on their website. Keep up with Bo and his family by following @BoBigelow and @strongerpodcast on Twitter. 

#67 Daniel DeFabio on Disorder: The Rare Disease Film Festival

#67 Daniel DeFabio on Disorder: The Rare Disease Film Festival